Mama

Yesterday was a rather neat day here at the cottage. In the morning our Munchkin was playing in the livingroom and as I was heading towards the kitchen to get something, looked in my direction and said, "Ma Ma" with this look of don't go. It came out more muh muh but you could tell that is what he meant.

It was awesome. He hasn't done it since but he'll do it again soon I am sure.




- Posted using BlogPress from my iPad

Location:Awenda Park Rd,Tiny,Canada

Fruity Chicken

As many of you know we've been dealing with our Munchkin not eating very much of anything for a very long time due to the drugs he was on. We were super happy that he started eating again after his surgery. He only likes to eat sweet things though which is a bit of a challenge for getting all the nutrition he needs. He's generally been flat out refusing to eat vegetables and meat. You might get one spoonful in but that's about it. Tonight though we managed to get him to eat a little bit of chicken. It was cleverly hidden in a whole lot of fruit puree, but he ate it and didn't turn up his nose at it. This was super happy making for us. We're hoping for a repeat performance tomorrow and that we can slowly increase the amount of chicken and he'll start to like it. And since I haven't shared a photo lately, here's one of him on his brand new couch. One of our neighbours very thoughtfully gave it to him as a welcome home from the hospital present. He loves it and so do we. He looks like such a grown up kid on that couch though.

Bubble Wrap and Food tossing

I haven't written in a little while, it was super crazy with Munchkin being up at Bloorview and there didn't seem to be enough hours in the day. Munchkin is home now, which is fantastic and is doing really really well. I'm sure I will fill in a few posts with details in the next few days as I have a bit more time. But tonight he was super funny. At dinner he was showing his preferences for food. He started doing this over the past few days. If he doesn't like or want the finger food I give him, he grabs it in his left hand flings his arm out and drops it on the floor. He really didn't like the veggie nuggets and they all were put on the floor as soon as they were handed to him they landed on the floor. What a funny little guy. Then after dinner I put a piece of bubble wrap from a package on the floor and had him stand on it. He had a ball stomping on the bubble wrap. The next time I do it with him I'll have to find the small bubbles since he's not quite heavy enough to pop the bubbles. He is such a cute little goof.

Swimming

As a bit of an update, we've changed locals. We were at Sick Kids, got to go home for the weekend (yay!) and then checked into Bloorview yesterday for our stay here. All of the therapists seem quite pleased with how well he is doing. This is fantastic as far as I'm concerned. Hopefully it means we won't be here for too too long. He's remembering that he likes food. Today he ate more in one sitting that he did some days before the surgery. That was awesome. He's super picky about what he will and will not eat, but we're hoping to pack the pounds back on. We still have to work on him drinking more or he'll have to have his nose tube put back in. We're hoping he won't have to have that happen. The best part of today though was swimming. They have family swim here at Bloorview 2 nights a week. We were able to get signed up for tonight (apparently that's almost unheard of to get clearance that quickly). I wasn't sure how he would be in the pool. The last we had him in one, he kept trying to fall asleep. It was right after we started some of the seizure drugs. He does like baths though so I figured he might like it. Like it was an understatement. He screeched with joy, giggle and had a great old time for the hour we were in the pool. He didn't want to leave. He even figured out how to kick without me really showing him how. I think we are going to be signing up for sure for swimming every time it's offered.

Healing and getting better

So our little guy is doing better and better every day. My sister was telling me that the change in 3 days was huge. She had been here on Friday and came back to see him on Monday. As I post this he's playing in his crib. And he is becoming more and more my wee little boy I had before the surgery. I like that he's starting to be his cheerful self again. We still have a ways to go. He's not particularly interested in eating which means he might have to get his NG tube put back in. My poor skinny skinny little guy. We are hoping that in the next few days he will be transferred up to Bloorview so he can start his rehabilitation in earnest and can come home sooner rather than later. But overall he is doing well and his surgeon is pleased with him. So that's good.

A picture

I thought I would post up a photo of Munchkin. I took this a day ago.




- Posted using BlogPress from my iPad

Location:Sick Kids

A Munchkin Update

Apologies to all about the lack of updates about our wee Munchkin. He's been a snuggle monster and just wants to snuggle all of the time which doesn't leave much in the way of time to update the internets. He's doing reasonably well. He is very grumpy and would like to sleep all the time. He's also got a rather delicate tummy and wants to throw up at least once a day. He is slowly getting better. Today he was giggling a little at the bubbles his therapist was blowing.