Wednesday, July 4, 2012


As a bit of an update, we've changed locals. We were at Sick Kids, got to go home for the weekend (yay!) and then checked into Bloorview yesterday for our stay here. All of the therapists seem quite pleased with how well he is doing. This is fantastic as far as I'm concerned. Hopefully it means we won't be here for too too long. He's remembering that he likes food. Today he ate more in one sitting that he did some days before the surgery. That was awesome. He's super picky about what he will and will not eat, but we're hoping to pack the pounds back on. We still have to work on him drinking more or he'll have to have his nose tube put back in. We're hoping he won't have to have that happen. The best part of today though was swimming. They have family swim here at Bloorview 2 nights a week. We were able to get signed up for tonight (apparently that's almost unheard of to get clearance that quickly). I wasn't sure how he would be in the pool. The last we had him in one, he kept trying to fall asleep. It was right after we started some of the seizure drugs. He does like baths though so I figured he might like it. Like it was an understatement. He screeched with joy, giggle and had a great old time for the hour we were in the pool. He didn't want to leave. He even figured out how to kick without me really showing him how. I think we are going to be signing up for sure for swimming every time it's offered.

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