A Munchkin Medical Update

I've been putting off writing this post for awhile. Many of you know already,but some don't that our wee little Munchkin is going to need some brain surgery to correct his seizure disorder since all of the drugs we've been giving him haven't been able to completely control the seizures. He had some testing done back in January that indicated that he would need to have the surgery. The surgery is going to be happening in just a few weeks in June. He's going to have what is called a functional hemispherectomy. If you are going to google it as I know some of you will, make sure you put the functional in front and ignore any articles about just hemispherectomy. That is a different surgical procedure and a really nasty one and you don't want to have happen to our Munchkin. Basically it means we are disassociating his right and left brain. All of his seizures are in the left side of the brain. And apparently over time the left brain can teach the right brain how to have seizures too and that would not be good at all. Also, in a large number of cases this surgery gets rid of the seizures completely. It's pretty scary stuff, but it should help him get better. They are predicting that he will get back to normal afterwards with therapy etc. He will at least temporarily lose the ground he's gained with his right arm, but they feel that he should do well. We don't know when the surgery is going to be, but we'll keep you updated. Our poor little guy has a long road ahead of him, but he's a little fighter and he's going to be just fine. Here's a link to some info about the surgery. Also we have apparently "The Guy" for our surgeon so that makes me feel a little better. Our little guy just loves scaring us to death. http://www.webmd.com/epilepsy/functional-hemispherectomy I've set up a "care page" with Sick Kids which I believe we can use for sending out notices and the like. If you would like to get updates just shoot me an meal and I can add you to the list.

Swinging in the Park

Today while out and about on errands and walking around we ended up near the park in Kensington Market.  So we decided to have a break to have a swing.  Munchkin really really loved the swing.  He hasn't been in awhile and had lots and lots of fun.  The higher we pushed him the more he giggled.

What a funny little eater

Our little guy is not so much on the eating of solid foods.  We're slowly getting him to try things, but for the most part he's not much into eating.   We've been trying all sorts of different foods to see what he might want.  And what does he seem to want to eat?  Tomatoes.  Raw tomatoes.  He has a fun time popping  a tomato in his mouth and squishing it around.

And then there were Nine

This morning as I was applying "teethy gel" to my Munchkin's sore gums I discovered that tooth number nine has arrived! Let's hope that the other few little white bumps pop soon so he doesn't have to be so uncomfy.


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Yay for the Heart

Good news is good news.

Today our Munchkin had his heart checked out.  He needs this done periodically just to make sure everything is working as it should.

So after spending most of the day at Sick Kids (these things always take longer than they should) we got the good (expected) news that his heart is just fine and they don't need to see him again for another year and a half.

Yay!

Munchkin & Tabitha

Just thought I would share this one.  It's kind of cute.  Tabitha loves her little boy.

What a Funny Munchkin

Munchkin is such a funny little boy.  As I think almost everyone knows, he has consistently refused to drink out of a bottle since birth and has only recently agreed that drinking out of a cup and a sippy cup are ok things to do.  We're actually still practicing with that.  Well there is a specific time period where he will drink out of a bottle it would seem.  This happened a few weeks ago and again today.  Both of these times he was absolutely miserable and only wanted to nurse all day long.  I have a small problem with that because he also has a tendency to bite when he's teething too.  So needless to say I was trying to figure out an alternative so I offered him a bottle.  Surprisingly he will take it.  But only when teething.  If you offer it at any other time he will flat out refuse.

Of course I had to take a picture for proof.