Swimming

As a bit of an update, we've changed locals. We were at Sick Kids, got to go home for the weekend (yay!) and then checked into Bloorview yesterday for our stay here. All of the therapists seem quite pleased with how well he is doing. This is fantastic as far as I'm concerned. Hopefully it means we won't be here for too too long. He's remembering that he likes food. Today he ate more in one sitting that he did some days before the surgery. That was awesome. He's super picky about what he will and will not eat, but we're hoping to pack the pounds back on. We still have to work on him drinking more or he'll have to have his nose tube put back in. We're hoping he won't have to have that happen. The best part of today though was swimming. They have family swim here at Bloorview 2 nights a week. We were able to get signed up for tonight (apparently that's almost unheard of to get clearance that quickly). I wasn't sure how he would be in the pool. The last we had him in one, he kept trying to fall asleep. It was right after we started some of the seizure drugs. He does like baths though so I figured he might like it. Like it was an understatement. He screeched with joy, giggle and had a great old time for the hour we were in the pool. He didn't want to leave. He even figured out how to kick without me really showing him how. I think we are going to be signing up for sure for swimming every time it's offered.

Healing and getting better

So our little guy is doing better and better every day. My sister was telling me that the change in 3 days was huge. She had been here on Friday and came back to see him on Monday. As I post this he's playing in his crib. And he is becoming more and more my wee little boy I had before the surgery. I like that he's starting to be his cheerful self again. We still have a ways to go. He's not particularly interested in eating which means he might have to get his NG tube put back in. My poor skinny skinny little guy. We are hoping that in the next few days he will be transferred up to Bloorview so he can start his rehabilitation in earnest and can come home sooner rather than later. But overall he is doing well and his surgeon is pleased with him. So that's good.

A picture

I thought I would post up a photo of Munchkin. I took this a day ago.




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Location:Sick Kids

A Munchkin Update

Apologies to all about the lack of updates about our wee Munchkin. He's been a snuggle monster and just wants to snuggle all of the time which doesn't leave much in the way of time to update the internets. He's doing reasonably well. He is very grumpy and would like to sleep all the time. He's also got a rather delicate tummy and wants to throw up at least once a day. He is slowly getting better. Today he was giggling a little at the bubbles his therapist was blowing.

It's Weird Without Munchkin

Tonight Munchkin is in the ICU and it's really strange not having him in the house. He's doing well the last we saw him before we came home. He was asleep with some buddies watching over him. It was a stressful day, but my Munchkin seems to be doing very well and we're so grateful it went well. Sophie, Hudson and Bunny are watching over him tonight.

Surgery a success

We just spoke without surgeon and the surgery was a success. So we can see him in about half an hour.

Yay


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Today's the Day

We've just left out little Munchkin in the good hands of his surgeon. And now we wait and worry the whole time.


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Location:Sick Kids