Your First Christmas

Dear Rob,

Today was our first Christmas together.  It wasn't quite what I had envisioned for our first Christmas, but it was good all the same.  Your Dad and I came to see you at the hospital and you looked so cute in the little Santa hat they dressed you in.

Santa and his elf dropped by the hospital and brought you some presents and took a picture with you.

Look at your haul from Santa this year:

Next year will be even better because you will be at home with us.  

And there are a bunch of presents from your your family and friends waiting for you at home.  We opened them for you and we think you'll like them.  

I wish we could have had snuggles today, but you are still on your breathing tube which meant we couldn't have our snuggles.  Hopefully soon you'll  be able to have snuggles with me.  I miss them and I'm sure you do too.  

Love Mom

The Daily Rob Update

No much new today.  The wee guy was just hanging out and working on getting weaned off the respirator.  He's not quite ready yet, but hopefully in the next couple of days he will be.  He also seems to be a little less yellow as well which is good.  So no cool face mask for him today.

Since he's still on the breathing tube we couldn't have snuggles, but we did do some hand holding again.

He is a funny little guy.  He keeps searching around  to see if he can pull off leads and bits of tape and things.  The other day I actually had to stick his ECG lead back on about 4 or 5 times while I was there.

Of course, I must post a picture

Breathing tubes and no PICC Line

No photo today.  I didn't take one.  It just kind of slipped my mind.

So our wee guy didn't have such a great night.  He wasn't breathing so well and it was bringing his heart rate up a bit too high so they decided to but the breathing tube back in.  Since they did that this morning, they didn't put the PICC line in.  They thought he might want the day off to relax and recover from having the tube put back in.  So they will be doing the PICC line tomorrow morning instead.  Then after that they want to transfer him to the NICU while he grows big enough for his surgery.  So they will be just waiting for a bed then.

They are investigating to make sure he doesn't have any infections in his lungs or anything, but they all seem to think that it's just his little lungs not being quite developed enough yet. So the breathing tube should help with that.

The bad thing about having the breathing tube in is that I can't have him for snuggles.  So we spent part of our afternoon together holding hands instead.

Also, the Genetics Doctor came by and had a poke at him.  He doesn't think there is anything wrong with him genetically which is good.  He's still waiting on all the test results though.


But in general they think he's doing well and should start fattening up for surgery.  

Not so much with the cuddles today

Well today our wee guy was having a lethargic day.  That and he kept holding his breath scaring his Mom. If he keeps up with the holding the breath dealie he's going to have to go back on the breathing tube.

The sad thing about that was that I didn't get to have any snuggles with him today.  I did get to hold his wee hand.  And when it was time for me to go he didn't seem to want to let go.

All of this is pretty normal for the preemie types, but it's scary for Bruce and I.

Hopefully tomorrow will be a better day.

And as a side note, they were considering giving the wee guy a little bit of caffeine to make him wake up a bit.  He's also still a bit on the yellow side so there should be some more tanning for him.