It's Weird Without Munchkin

Tonight Munchkin is in the ICU and it's really strange not having him in the house. He's doing well the last we saw him before we came home. He was asleep with some buddies watching over him. It was a stressful day, but my Munchkin seems to be doing very well and we're so grateful it went well. Sophie, Hudson and Bunny are watching over him tonight.

Surgery a success

We just spoke without surgeon and the surgery was a success. So we can see him in about half an hour.

Yay


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Today's the Day

We've just left out little Munchkin in the good hands of his surgeon. And now we wait and worry the whole time.


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Location:Sick Kids

Munchkin goes on a Bike Ride

Today Munchkin went on his first bike ride. He road with me in the Ride for Heart. Super early this morning we packed him up in the bike trailer and off I went to do the ride with the team from my office. For those that don't know, Ride for Heart is an annual event in Toronto where the Gardner Expressway and the Don Valley Parkway are closed for the morning so riders who have signed up and done fundraising for the Heart & Stroke foundation can ride up and down the highway that is usually congested with cars. You also have a choice of three distances, 25k, 50k or 75k. This year we did the 25k. I thought that 50k would be too much for the little munchkin and well for me since I haven't really done much in the way of bike riding this spring. Munchkin did pretty well. He had a little meltdown when we got onto the Don Valley from the Gardiner. The helmet was pretty heavy on his head and his head kept flopping forward. Once we had a little snuggle and he calmed down, I got him rearranged with some blankets so his head would stay upright and comfy. He promptly fell asleep and stayed that way for the rest of the ride. All in all it was a good ride. I managed to raise $1378 for the Heart & Stroke Foundation. This was the best year yet for donations. It was so wonderful to be able to bring Munchkin with me this year. It's become an important event for me to take part in because of him and this year especially so because I wanted to do something in honour of his honorary grandfather Charlie who passed away this past March from heart issues. Munchkin's Mom. PS. I'll post some pictures tomorrow.

A Munchkin Medical Update

I've been putting off writing this post for awhile. Many of you know already,but some don't that our wee little Munchkin is going to need some brain surgery to correct his seizure disorder since all of the drugs we've been giving him haven't been able to completely control the seizures. He had some testing done back in January that indicated that he would need to have the surgery. The surgery is going to be happening in just a few weeks in June. He's going to have what is called a functional hemispherectomy. If you are going to google it as I know some of you will, make sure you put the functional in front and ignore any articles about just hemispherectomy. That is a different surgical procedure and a really nasty one and you don't want to have happen to our Munchkin. Basically it means we are disassociating his right and left brain. All of his seizures are in the left side of the brain. And apparently over time the left brain can teach the right brain how to have seizures too and that would not be good at all. Also, in a large number of cases this surgery gets rid of the seizures completely. It's pretty scary stuff, but it should help him get better. They are predicting that he will get back to normal afterwards with therapy etc. He will at least temporarily lose the ground he's gained with his right arm, but they feel that he should do well. We don't know when the surgery is going to be, but we'll keep you updated. Our poor little guy has a long road ahead of him, but he's a little fighter and he's going to be just fine. Here's a link to some info about the surgery. Also we have apparently "The Guy" for our surgeon so that makes me feel a little better. Our little guy just loves scaring us to death. http://www.webmd.com/epilepsy/functional-hemispherectomy I've set up a "care page" with Sick Kids which I believe we can use for sending out notices and the like. If you would like to get updates just shoot me an meal and I can add you to the list.

Swinging in the Park

Today while out and about on errands and walking around we ended up near the park in Kensington Market.  So we decided to have a break to have a swing.  Munchkin really really loved the swing.  He hasn't been in awhile and had lots and lots of fun.  The higher we pushed him the more he giggled.

What a funny little eater

Our little guy is not so much on the eating of solid foods.  We're slowly getting him to try things, but for the most part he's not much into eating.   We've been trying all sorts of different foods to see what he might want.  And what does he seem to want to eat?  Tomatoes.  Raw tomatoes.  He has a fun time popping  a tomato in his mouth and squishing it around.